May 2, 2023
Day - 12
Things started out a bit rocky last evening and early this morning. Nausea and minor vomiting. Fortunately, settled down by the time I woke up in time for more meds and infusions. It was also fairly stormy outside as I could hear the wind and rain right outside my window. Sometimes, it was also a . . .
May 1, 2023
Day + 11
I’m coming along , but I’ll definitely be here in the hospital at least a few more days. Today was a really busy day. Even the main nurses commented. Visits by the doctors, dietitian, case manager and others. I’ve also been outfitted with a walker, but still have to have my trusty pole machine as well . . .
April 30, 2023
Day + 10
I’m feeling better today. No fever, and I was actually able to take a sit down shower as well as get up to brush my teeth. Still a bit wobbly, but I could do a walk around the ward with Jenna following me close by along with my “friend” the machine that I’m attached to. I’ve been enjoying all the flower photos, short videos and other news . . .
April 28, 2023
Today wasn’t so great. High fever and chills earlier. Am now on oxygen and a heart monitor. Fever down, so I don’t feel so wiped out.
One of my nurses Lindsey asked me what my favorite native flower is. Hard to choose, but Calochortus is certainly right up there.
Calochortus kennedyi, . . .
April 26, 2023
It’s been 6 days since my Carvykti infusion. “Day + 6” is how they phrase it. This morning I was very wiped out. Most of my lab numbers are too low or too high depending. It’s pretty much what’s expected, and contributes to my fatigue. I also have a fever which they’re trying to lower. Icy washcloths under my armpits, on my . . .
April 23, 2023
April 20 is yet another birthday for me. My first one is my actual birthday (November 26). My stem cell transplant on December 12, 2017 is considered my "second" birthday. Now, I have a third birthday: April 20, 2023, the day of my bioengineered T-cell infusion. The staff came in to wish me a Happy Birthday, including singing to me . . .
April 19, 2023
It may be a while before my next blog update. I go into the hospital later today, and I'm not sure what I'll have on hand or how I'll be feeling. They estimate 95% of patients will get at least one bout of CRS (Cytokyne Release Syndrome) and 23% will develop Neurotoxity. I sure . . .
